Maryam is a bright and resilient infant with Coffin-Siris syndrome. This rare genetic condition has caused complex medical needs. She has profound muscle weakness and cannot feed safely by mouth. [...]
In 2025, the MAD Ball becomes the MAD GALA — a milestone celebration of 25 years of Making A Difference. Held on Melbourne Cup Eve at the iconic Plaza Ballroom, the MAD GALA will bring together [...]
Aiden is a vibrant six-year-old living with MELAS syndrome. This progressive mitochondrial condition causes gradual loss of mobility, cognitive function and communication. Aiden also lives with [...]